12

Autism Speaks Charity (Read 718 times)

    Like you said Jeff, early intervention is key. It plays an incredible role in a child's prognosis. If you guys ever want any information or have specific questions, don't hesitate to ask me. There's also a lot of pseudoscience out there on it, especially when it comes to treatments. I had seen the video before, and each time, I shudder at one point, when they say, "a world where no family has to live with autism." We should embrace autism and love the children as they are. My life has been touched in so many ways by children with autism and I embrace the fact that, as a diverse group of people, we can all love and express ourselves in different ways. Thanks for your support of the kids, and research, and intervention everyone! Smile
    I 100% agree with embracing them as they are! I definetly don't want to change my son. What I do want is to give him every possible way of coping with the issue's he has so that he can flourish in any envirement the best that he can. I know alot of the "quirks" that he has is because of what we believe is Aspergers with Sensory integration dysfunction and I wouldn't change them for any amount of money even if they do drive me nuts at times.

    Your toughness is made up of equal parts persistence and experience. You don't so much outrun your opponents as outlast and outsmart them, and the toughest opponent of all is the one inside your head." - Joe Henderson

      Yeah, that bit kind of bothers me, too. It's almost as if it paints autism with the same brush as terminal cancer. Autism makes some things difficult for those diagnosed and their families, but it's hardly a death sentence. My little nephew has some amazing gifts that are because of his autism, not in spite of it. k
      My cousin in law told me not to let Frankie be diagnosed. Her son has alot of the same issue's as he does and for some reason she feels that the lable would hurt him more than help him. Not sure why she feels that way.

      Your toughness is made up of equal parts persistence and experience. You don't so much outrun your opponents as outlast and outsmart them, and the toughest opponent of all is the one inside your head." - Joe Henderson


      Needs more cowbell!

        Pam, I think a diagnosis is definitely a good thing. He may end up "labeled" no matter what happens, but if he is autistic, at least he can start treatment and make the most of his potential--plus you would be better able to understand the hows and whys of things he does. I really think appropriate therapy for autistic kids can make a world of difference. k

        Kirsten - aka "Auntie Kirsten"

        '14 Goals:

        • 2 olympic distance duathlons -- 6 days apart -- PR at least 1

        • 130#s (and stay there, gotdammit!)

          Oh I totally agree. The school is the one who actually set things in motion. For the past couple of years I've just thought I a really really SMART but WEIRD child. I had talked to the doctor about his sensory issue's but never really got anywhere. Once he started kindergarden I did however question how the heck he was going to deal with first grade (and I'm not talking academically). Now we'll have the school and our pediatrician working together!

          Your toughness is made up of equal parts persistence and experience. You don't so much outrun your opponents as outlast and outsmart them, and the toughest opponent of all is the one inside your head." - Joe Henderson


          Needs more cowbell!

            That's great news! Though I hear you on the smart + weird thing--I wonder if the two things are ever independent of one another.... Wink k

            Kirsten - aka "Auntie Kirsten"

            '14 Goals:

            • 2 olympic distance duathlons -- 6 days apart -- PR at least 1

            • 130#s (and stay there, gotdammit!)


            madness baby

              I'm so glad you girls agree with my thoughts on that phrase. I've always had a tough time with the name of the CAN group, Cure Autism Now. We were at a CAN walk last weekend and a family had shirts on that said "Cure (child's name) Now!" and even the kid had a shirt on. I couldn't even look at it. Another kid had "I am a Recovered Kid" sign posted on his back. Pam, I think your feeling about the diagnosis is what you should follow. I'd recomming getting a couple of independent assessments from licensed psychologists, and those who specialize in ASD are best. Autism is kind of the new hot diagnosis, and there is a lot of overdiagnosing going on. But, you can trust it if you get an independent eval from a specialist. Good luck with everything. I'll be thinkin about you!
              deb
              12