After my latest bloodwork coming back even more hypo (TSH=0.018, yikes!) and my ultrasound showing an enlarged thyroid, I stopped taking Levoxyl cold turkey 3 weeks ago. The first week was OK, but the second week - BAM, it hit me like a sack of potatoes. I put on 6 pounds despite running more than ever. I was a crazy emotional mess. I’ve been sleeping more but I am so tired and have crazy mood swings. It was amazing how quickly I went from having energy and feeling good to feeling so awful. I dealt with all of this right before I got diagnosed the first time, so I’ve been down this road before and it’s not fun. Last week, I decided to make a change and keep track of everything I was eating. I was actually pleasantly surprised to see that easting better has made me feel much better. I dropped most of the weight off, have a little more energy again, and though I am still moody and emotional it's not awful most of the time. I can live like this, which is more than I could say last week when I just wanted to hide from the world. I am seeing a new specialist Novembe 28th, and will get my labs tested again. Depending on those results, I'll probably get another ultrasound to see if the enlargement has gone down. Hopefully it was just fom being hyper fo awhile and my body will be able to regulate on it's own. I'm such a weird medical case. Random phantom foot pains and a thyroid that suddenly switched fom hypo to hyper for no good reason!

nope- I will have to ask the new specialist about this one. My PCP was the one who diagnosed me and just said I was hypo and the first specialist pretty much ignored me, so I don't know if anyone ever had a specific thyroiditis diagnosis. I'm still feeling OK- but I am extremely emotional and cannot control it at all. At least once a day I am in the middle of a normal conversation and all of a sudden my eyes tear up and I have to stop talking to keep from crying. It's so frusterating! My family understands why it's happening, but when I am talking to other people it's embarassing!

Update: so - tired, dizzy, and cold - but a dose increase was approved. Not much - and even my endo is not expecting that it will be enough - but I am so sensitive to even small dose changes that better to be safe than sorry - sigh. Increasing back to 112 every day (was on 112 x 5 days and 100 x 2 days) repeat labs to be back for 12-12 appointment and then if FT3 is still low and FT4 is still within normal range, will start adding days at 125 mcg in with the 112 doses. Progress - for the first time ever, my endo said " your TSH is still pretty close to 0 - it doesn't seem like it is reflecting your thyroxine levels". Hope y'all are proud of me for refraining from making any additional comments at that point So - a year later, looks like I still have a few months left to go to get straightened out - at least progress is being made in the right direction, hopefully I will start to feel a little better in the next 7-10 days.

thanks Cheryl- The appt is Wednesday, so I will let you know! I'm feeling OK, still emotional (especially when I'm a little tired, can't stop the tears at all), but otherwise am feeling pretty good right now. It will be interesting to see what the bloodwork says. I am thinking of you too- I am so happy for your little bit of good news this past week.

I think the addition of Cytomel to my Synthroid several months ago has made me hyperthyroid because I feel "revved up." I wouldn't mind the extra energy except that for the last week it's been more like nervousness or anxiety that I don't usually have. Has anyone else had this experience too? It was so pronounced last Thursday and Friday that I went without any of my thyroid pills for 3 days. I was still nervous this morning getting ready for work, but took a Synthroid once I got here. I haven't been off it for 23 years and am uncertain about going without it for long. I know I should contact my doctor, and I guess that's what I'll do next.

Thanks for your kind and helpful input. I have an appt to see my doctor this afternoon. I'm sure lab tests are the first thing to do, but I have to see her to get them ordered. I haven't taken the Cytomel since last Thursday, but only went without the Synthroid for 1 and then 2 days. The inbetween days that I took it, I was worse. It's terrifying because the hyeranxiety nearly caused me to faint while driving last Thursday, and gave me 3 other iffy episodes while driving since. (With certain triggers, I get vasovagal syncope.) My very sweet and concerned husband is now driving me to and from work, which is a 20-mile trip in the opposite direction for him. Anxiety has never been a problem for me in the past, so I'm quite distressed over all this. I'll let you know how it goes.

Scary is right! Saw the doc tonight. Hyperthyroid is the presumed diagnosis. I have many of the classic symptoms. The plan is to forego any thyroid meds for a week and then start from there, depending on lab results to be done tomorrow. She also gave me a prescription for anxiety medicine so I can drive myself to work safely until this is resolved. I tried it tonight at home so I can know how I respond to it before driving under its influence. The intense nervousness I had all day has dissolved, but I don't feel sedated. So I'm hopeful that this will be the answer to that. Thanks for all your support, Cheryl. ~Amy