Thyroid Q and A or Running Hot and Cold

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Symptoms (Read 832 times)

    post your questions about symptoms

    Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




    Go With The Flow
    Thyroid Support Group

      After my latest bloodwork coming back even more hypo (TSH=0.018, yikes!) and my ultrasound showing an enlarged thyroid, I stopped taking Levoxyl cold turkey 3 weeks ago. The first week was OK, but the second week - BAM, it hit me like a sack of potatoes. I put on 6 pounds despite running more than ever. I was a crazy emotional mess. I’ve been sleeping more but I am so tired and have crazy mood swings. It was amazing how quickly I went from having energy and feeling good to feeling so awful. I dealt with all of this right before I got diagnosed the first time, so I’ve been down this road before and it’s not fun. Last week, I decided to make a change and keep track of everything I was eating. I was actually pleasantly surprised to see that easting better has made me feel much better. I dropped most of the weight off, have a little more energy again, and though I am still moody and emotional it's not awful most of the time. I can live like this, which is more than I could say last week when I just wanted to hide from the world. I am seeing a new specialist Novembe 28th, and will get my labs tested again. Depending on those results, I'll probably get another ultrasound to see if the enlargement has gone down. Hopefully it was just fom being hyper fo awhile and my body will be able to regulate on it's own. I'm such a weird medical case. Random phantom foot pains and a thyroid that suddenly switched fom hypo to hyper for no good reason!
        Shaunna - ever been told that you have Hashimoto's thyroiditis? It can go through a phase of hyperthyroidism, although generally it's a cause of hypothyroidism. Seems like there was something else I heard of that could have you moving back and forth between the two, but can't think of it right now. Not a weird medical case or if you are, what does that make me Wink Still feeling better?

        Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




        Go With The Flow
        Thyroid Support Group

          nope- I will have to ask the new specialist about this one. My PCP was the one who diagnosed me and just said I was hypo and the first specialist pretty much ignored me, so I don't know if anyone ever had a specific thyroiditis diagnosis. I'm still feeling OK- but I am extremely emotional and cannot control it at all. At least once a day I am in the middle of a normal conversation and all of a sudden my eyes tear up and I have to stop talking to keep from crying. It's so frusterating! My family understands why it's happening, but when I am talking to other people it's embarassing!
            Hugs, Shaunna - that was me yesterday - I so hear you. Fatigue and dizzy head starting up again - although I was trying to rule out a minor concussion after yesterday's fall. Had a bad headache yesterday, but that is better this morning - the other stuff is not. I am trying to hold it together so I can at least keep my calm while talking with my docs - Gyn today, Endo tomorrow. At least my leg is still in one piece Smile

            Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




            Go With The Flow
            Thyroid Support Group

              Update: so - tired, dizzy, and cold - but a dose increase was approved. Not much - and even my endo is not expecting that it will be enough - but I am so sensitive to even small dose changes that better to be safe than sorry - sigh. Increasing back to 112 every day (was on 112 x 5 days and 100 x 2 days) repeat labs to be back for 12-12 appointment and then if FT3 is still low and FT4 is still within normal range, will start adding days at 125 mcg in with the 112 doses. Progress - for the first time ever, my endo said " your TSH is still pretty close to 0 - it doesn't seem like it is reflecting your thyroxine levels". Hope y'all are proud of me for refraining from making any additional comments at that point Roll eyes Tongue So - a year later, looks like I still have a few months left to go to get straightened out - at least progress is being made in the right direction, hopefully I will start to feel a little better in the next 7-10 days.

              Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




              Go With The Flow
              Thyroid Support Group

                Shaunna - just wanted to let you know that I was thinking of you and wishing you best of luck with the new endo this week Smile Please keep us posted...

                Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




                Go With The Flow
                Thyroid Support Group

                  thanks Cheryl- The appt is Wednesday, so I will let you know! I'm feeling OK, still emotional (especially when I'm a little tired, can't stop the tears at all), but otherwise am feeling pretty good right now. It will be interesting to see what the bloodwork says. I am thinking of you too- I am so happy for your little bit of good news this past week.
                    Shaunna - found this site - first time I have EVER found anything that comes close to describing what I feel I go through when my T3 to T4 levels are out of sync ....depression and hypothroidism here is the link to the woman's homepage - she is a Vocational Rehab Counselor with a master's in counseling. She has Hashimoto's Thyroiditis and much of her info is about that, as well as some general info as well. Hashimoto's Info warning - she likes cats and there are lots of cat pictures on her site Big grin 15 days today since the increase and I have been feeling my mood to be very stable over the last week,but I am still dealing with the typical physical problems I have when I am "low". I am just glad to be feeling better. I have another 10 days till my next lab draw. Hang in there, Shaunna, I don't know why, but I have a feeling that you are getting close to getting your own answers Smile

                    Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




                    Go With The Flow
                    Thyroid Support Group

                      I think the addition of Cytomel to my Synthroid several months ago has made me hyperthyroid because I feel "revved up." I wouldn't mind the extra energy except that for the last week it's been more like nervousness or anxiety that I don't usually have. Has anyone else had this experience too? It was so pronounced last Thursday and Friday that I went without any of my thyroid pills for 3 days. I was still nervous this morning getting ready for work, but took a Synthroid once I got here. I haven't been off it for 23 years and am uncertain about going without it for long. I know I should contact my doctor, and I guess that's what I'll do next.

                      Use your momentum...keep going.  You know you can make it.

                        Please contact your doc - best thing is to have your labs drawn with a free T3 (more accurate measure of if your cytomel is pushing your T3 levels too high). Having your labs done would give your doc an idea of how much to back off/adjust your synthroid - cytomel or both. You could feel a difference not taking your cytomel for 3 days, but the synthroid is much longer acting. Seriously - call your doctor. I tried cytomel with synthroid - it didn't work for me, although I wish it had - I never felt better - until I went hyper and ended up in the hospital with chest pain. Being hyper is nothing to mess around with. Good luck and please keep us posted as to how you are doing. ((((((hugs)))))))

                        Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




                        Go With The Flow
                        Thyroid Support Group

                          Thanks for your kind and helpful input. I have an appt to see my doctor this afternoon. I'm sure lab tests are the first thing to do, but I have to see her to get them ordered. I haven't taken the Cytomel since last Thursday, but only went without the Synthroid for 1 and then 2 days. The inbetween days that I took it, I was worse. It's terrifying because the hyeranxiety nearly caused me to faint while driving last Thursday, and gave me 3 other iffy episodes while driving since. (With certain triggers, I get vasovagal syncope.) My very sweet and concerned husband is now driving me to and from work, which is a 20-mile trip in the opposite direction for him. Anxiety has never been a problem for me in the past, so I'm quite distressed over all this. I'll let you know how it goes.

                          Use your momentum...keep going.  You know you can make it.

                            That's one great DH you have there. Being out of whack is really scary. Remember, though, that your running has given you a strong heart and your body can tolerate a lot of short term stuff. I'm so glad to hear that you will be seeing your doc. When I had my "episode", I had to go completely off my meds for a week - that really scared me - it was all under my doc's supervision, and although it was a rough transistion - it all turned out well - with no after effects. Thanks for the update - been thinking of you and sending healing vibes your way Smile

                            Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




                            Go With The Flow
                            Thyroid Support Group

                              Scary is right! Saw the doc tonight. Hyperthyroid is the presumed diagnosis. I have many of the classic symptoms. The plan is to forego any thyroid meds for a week and then start from there, depending on lab results to be done tomorrow. She also gave me a prescription for anxiety medicine so I can drive myself to work safely until this is resolved. I tried it tonight at home so I can know how I respond to it before driving under its influence. The intense nervousness I had all day has dissolved, but I don't feel sedated. So I'm hopeful that this will be the answer to that. Thanks for all your support, Cheryl. ~Amy

                              Use your momentum...keep going.  You know you can make it.

                                You are most welcome, Amy. Hey, I am glad to have peeps I can share with as well - we support each other. So glad to hear you are feeling better. Smile

                                Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




                                Go With The Flow
                                Thyroid Support Group

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