Thyroid Q and A or Running Hot and Cold

1

Share Your Story (Read 528 times)

    Please share some of your journey with us Smile

    Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




    Go With The Flow
    Thyroid Support Group

      I started my thyroid journey almost 3 years ago, but likely my thyroid started going a little haywire 10 years ago. My problem was multiple hemmorhagic cysts. Eventually my thyroid enlarged to the point that it interferred with swallowing and turned out that it was causing hoarseness from the pressure that it was putting on my laryngeal nerves. Making the decision to have my thyroid removed was particulary difficult as it was still functioning normally. It was the right decision. The ENT who did my surgery said the my gland was much worse than he thought. Recouping from the surgery was the least of my problems. It has taken 10 months to get my Synthroid doses optimized. I had reached a point that I didn't believe that I would ever be the same again. I am. Patience was incredibly hard - OK - I wasn't patient , and I did have a couple of melt downs - but I made it through and so can you. My journey included many, many blood tests, ultrasounds, 4 fine needle biopsies, 2 nuclear medicine scans, and total thyroidectomy. I have had experiences with both Synthroid and Cytomel. I have done much research as well.

      Life is not measured by the number of breaths we take, but by the number of moments that take our breath away...(unkown)




      Go With The Flow
      Thyroid Support Group

        My story: When I was 20, all of a sudden I started being really tired all the time but not sleeping, was really sluggish, gaining weight like crazy despite working out, hair was falling out in clumps, and was extremely emotional and depressed. Basically I felt like I was a fraction of the person I used to be, but had no idea why. I am lucky in the fact that my PCP ordered a thyroid test within 2 months of the onset of my symptoms and found me to be hypothyroid. I went on Levoxyl and again was lucky that my initial dose was the right amount to put me back into a "normal" TSH range. When I first started taking it, I felt better, but it made me into a huge insomniac- it took 3+ hours to fall asleep and then I would sleep about 2-3 hours, lay awake for another 3 hours, then finally grab one last hour of groggy sleep before I had to get up. It took about 3 months on the drug before I could sleep through the night. I felt pretty good for about 2 years like this, then some of the sluggishness and depression came back as well as weight gain. I was still testing in "normal" TSH values but my PCP wanted me to see a specialist. This is when things started to get ugly. The specialist I saw told me that obviously something was wrong with me mentally because my TSH was still normal. I had crazy mood swings, was still gaining weight despite diet and excercise, and was completely unmotivated to do anything. I asked her to test for free T3 and free T4 levels and she refused. She switched me onto Synthroid (same dose) and when I got tested again 7 months later my TSH was suddenly in the severe hyper levels, but I still had all of my hypo symptoms. Finally, I decided not to deal with her anymore and went to a different doctor, who put me back on Levoxyl. Unfortunately, I had to wait 2 months before any new bloodwork for Levoxyl to get back into my system and do it's thing, so I just had the blood drawn last week. I am seeing the doctor next week to discuss the results (he ordered a full thyroid and metabolic panel along with other stuff), so I will be back with an update on that later on. I have actually been feeling a bit more like myself the past few weeks, so that's a positive change. Smile