RunningAHEAD - Topic: Anyone run with IBS? (page 4)

xor

posted: 4/6/2009 at 5:39 PM
modified: 4/6/2009 at 5:39 PM

Yeah, no kidding! Posting in this thread, you have to run for cover!

Beware flinging poo.

celiacChris

3Days4Cure

posted: 4/6/2009 at 5:48 PM

Quote from xor on 4/6/2009 at 5:39 PM:

Beware flinging poo.

Or flying cows.

Chris
PRs: 27:26 5k/ 49:52 5mi/ 58:17 10k/ 2:09:24 half/ 5:13:17 Full

Post-Bipolar PRs: 38:35 5k/ 1:09:34 8k/ 1:09:39 5mi/ 1:33:03 10k/ 3:20:40 Half

2022 Goals

Back to 10k

Runnerjohn

Certifiably Insane

posted: 4/6/2009 at 7:04 PM

Quote from celiacChris on 4/6/2009 at 5:48 PM:

Or flying cows.

"I can't talk right now! We've got cows!" "Another cow!" "Uh, I think that was the same one...." I hope I'm not the only one who know what movie that's from. It's one of the few I've actually seen. Big grin

On the road since 1978! "To be good is not enough when you dream of being great." I am not obsessed! I'm just INTENSE! "Nothing is foolproof to a talented fool." Why? Because race results stay on Google forever! (Reasonably recent) PR's: 5K - 16:40 10K - 35:04 HM - 1:18:30

celiacChris

3Days4Cure

posted: 4/6/2009 at 9:43 PM

Quote from Runnerjohn on 4/6/2009 at 7:04 PM:

I hope I'm not the only one who know what movie that's from. It's one of the few I've actually seen.

Ooh..I forgot about that reference--that's a good film too. Smile

I was thinking more along the line of Fetchez la vache! A bit more of a cult film.... Bonus points for those who get that reference.

Chris
PRs: 27:26 5k/ 49:52 5mi/ 58:17 10k/ 2:09:24 half/ 5:13:17 Full

Post-Bipolar PRs: 38:35 5k/ 1:09:34 8k/ 1:09:39 5mi/ 1:33:03 10k/ 3:20:40 Half

2022 Goals

Back to 10k

Runnerjohn

Certifiably Insane

posted: 4/6/2009 at 9:53 PM
modified: 4/6/2009 at 9:56 PM

"Your mother was a hamster, and your father smelled of elderberries! Now, will you leave, or must I taunt you for a second time?" (Another of the few I've actually seen, believe it or not! Big grin

)

On the road since 1978! "To be good is not enough when you dream of being great." I am not obsessed! I'm just INTENSE! "Nothing is foolproof to a talented fool." Why? Because race results stay on Google forever! (Reasonably recent) PR's: 5K - 16:40 10K - 35:04 HM - 1:18:30

LuckyLindy

posted: 4/6/2009 at 10:15 PM
modified: 4/6/2009 at 10:21 PM

Quote from carbo19 on 4/5/2009 at 10:22 PM:

Sorry Lindy, that sucks. I'm sure you've looked at this already... but has the celiac created other conditions due to intestinal damage? For instance I am now lactose intolerant and it may never get better. My mother is very sensitive to small seeds like on strawberries or sesame seeds. Are you also corn sensitive?

I'm not sure if there was more extensive damage or not. I did have a biopsy, which came up negative. My dietary "intolerances" have grown since then, even though it has been 5 years since I've touched any gluten (I'm fanatic about staying GF). But once I realized I could lose the chance of getting good self-employed health insurance if diagnosed, I haven't really been to the doctor and have managed the symptoms via diet. I've spoken to a few docs off the record, and those have said that if I can manage it via diet there's not much benefit I can gain by going to a doctor.

Quote from celiacChris on 4/5/2009 at 11:57 PM:

Three thoughts from the peanut gallery: 1. Were you eating mostly gf when you were tested? This will often cause a false negative.

On the orders of the GI doc, I ate TONS of gluten for 1 month before the test ... as in 15,000+ calories per day of the stuff (I had to keep a food diary ... I never dropped below 10,000 calories/day during that month). When I switched to this wheat laden diet I was literally in the bathroom every 30 minutes (some days over 30 times). That whole month was agonizing. For those that like the graphic details (which this thread seems to be heavy on) - a few nights before the test I sat down and ate a whole Papa John's large supreme pizza at a friend's house (you get VERY hungry when not digesting things). 35 minutes later it came right out, with no change in appearance. The doc had said this would be normal, and that I should really "abuse" my system with gluten before the test ... so I ate another one right after. My wife almost lost her dinner. After nightly episodes like this, I was surprised that the 2 "gold standard" of the 3 tests given came up negative. Given my family history though, I immediately went back to GF once the tests were done. Unfortunately, I have slowly had to restrict my diet more and more over the years.

2. Someone else touched on this- many celiacs develop sensitivities. Most common are lactose, casein and soy.

That's quite possible. I've found that I can really only eat low-carb vegetables, limited amounts of beans, eggs, and all non-cured meats. Any type of carb sets me off, including fruits, grains, milk, etc. This also really leaves me with few restaurant options, as most GF meals have something other than meat and veggies. Stinks from a social perspective ("thanks for inviting me to dinner, mind if I just eat your salt?", but I am ECSTATIC that I've found a diet that allows me to lead a more normal life.

celiacChris

3Days4Cure

posted: 4/6/2009 at 10:41 PM

Quote from LuckyLindy on 4/6/2009 at 10:15 PM:

After nightly episodes like this, I was surprised that the 2 "gold standard" of the 3 tests given came up negative. Given my family history though, I immediately went back to GF once the tests were done. Unfortunately, I have slowly had to restrict my diet more and more over the years.

This comment may infuriate the doctors of this board (Trent), but it is possible you are simply gluten "intolerant". I'm on a few celiac listserves, and some people have tried everything to test positive, yet can't. However, they do very well on a gluten free diet. "Intolerance" isn't a real disorder, BTW. Anecdotally, intolerance is more pervasive than I would expect a placebo effect to be. Ditto on the unproven effects of the diet on Autism (a comet topic on celiac forums). I hate to say it, but try limiting either your soy or lactose/milk product exposures. A ton of people have issues with that. Cutting one of those out may help more. I'm one of the lucky few who don't yet have a second intolerance, but I am also careful to not overdo any one food type. Lots of variety, lots of color (and lots of plants) keeps my body from reacting to too much. I am so happy you do well with the diet. Think about joining a gluten free group/listserv--you find out great info (such as the modified food starch in Kraft is all CORN!! Smile

) and you may discover more restaurant options (Such as UNOs just launched a gluten free menu, including PIZZA). PS-- if you haven't seen it, check out "living Without" magazine. Great recipes, great info, free lists of safe foods.

Chris
PRs: 27:26 5k/ 49:52 5mi/ 58:17 10k/ 2:09:24 half/ 5:13:17 Full

Post-Bipolar PRs: 38:35 5k/ 1:09:34 8k/ 1:09:39 5mi/ 1:33:03 10k/ 3:20:40 Half

2022 Goals

Back to 10k

SeeLizRun

posted: 4/7/2009 at 11:03 AM

Quote from Runnerjohn on 4/6/2009 at 7:04 PM:

"I can't talk right now! We've got cows!" "Another cow!" "Uh, I think that was the same one...." I hope I'm not the only one who know what movie that's from. It's one of the few I've actually seen.

Twister

A lot of great info on this thread, my sister suffers from IBS (or possibly crohns since my grandmother & cousin have it) so I forwarded her a few tid bits. Thanks!

~Liz, single mama to K, L & C Pain is nothing compared to what it feels like to quit.

carbo19

posted: 4/7/2009 at 4:11 PM

Quote from celiacChris on 4/6/2009 at 10:41 PM:

This comment may infuriate the doctors of this board (Trent), but it is possible you are simply gluten "intolerant". I'm on a few celiac listserves, and some people have tried everything to test positive, yet can't. However, they do very well on a gluten free diet. "Intolerance" isn't a real disorder, BTW. Anecdotally, intolerance is more pervasive than I would expect a placebo effect to be. Ditto on the unproven effects of the diet on Autism (a comet topic on celiac forums). I hate to say it, but try limiting either your soy or lactose/milk product exposures. A ton of people have issues with that. Cutting one of those out may help more. I'm one of the lucky few who don't yet have a second intolerance, but I am also careful to not overdo any one food type. Lots of variety, lots of color (and lots of plants) keeps my body from reacting to too much. I am so happy you do well with the diet. Think about joining a gluten free group/listserv--you find out great info (such as the modified food starch in Kraft is all CORN!! ) and you may discover more restaurant options (Such as UNOs just launched a gluten free menu, including PIZZA). PS-- if you haven't seen it, check out "living Without" magazine. Great recipes, great info, free lists of safe foods.

Great info for me too, thanks Chris!

Runnerjohn

Certifiably Insane

posted: 4/7/2009 at 9:51 PM

Quote from SeeLizRun on 4/7/2009 at 11:03 AM:

Twister

My son and I are stormchasers (well, severe weather spotters, but 'stormchaser' sounds more exciting!) so that's one of our favorite movies. Yeah, it's hokey, but it's still pretty cool. What?? Nobody knows the second movie? I think you're all just being polite. Big grin

"Living Without" is great! My wife is GF, but I really enjoy reading it, too.

On the road since 1978! "To be good is not enough when you dream of being great." I am not obsessed! I'm just INTENSE! "Nothing is foolproof to a talented fool." Why? Because race results stay on Google forever! (Reasonably recent) PR's: 5K - 16:40 10K - 35:04 HM - 1:18:30

Greggar

posted: 4/10/2009 at 1:29 AM
modified: 4/10/2009 at 7:35 AM

sorry, mang, i got sick of sorting through this crap.

Quote from Trent on 4/5/2009 at 7:15 PM:

Greggar, you and I have had some posts back and forth that reeked of animosity. I would like to apologize for any disrespect and move this to a level discussion because I think that you and I, and all those reading may benefit from it. Truce? If so, read on. If not, feel free to read on.

there is no animosity on my part. i stated my arguments, you refuted them, i refuted yours. nothing more, nothing less. my debate style can be... shall we say... difficult... but it is not born in animosity.

Quote from Trent on 4/5/2009 at 7:15 PM:

What then is this cure, one that comes on the grocery shelf, that you could buy and apply.

see my first post.

Quote from Trent on 4/5/2009 at 7:15 PM:

I am curious, because you say you could just buy it, and yet your educated internal medicine doc can't seem to be able to replicate in the same way such that she needs your help? You said you wanted to help people who suffer as you have; share your knowledge.

she's just too lazy. seriously. don't get me wrong, she's been one of my best friends for nearly 20 years, but she can't take care of herself to save her life. she did her residency in the ER of harborview, though, so, if i ever crash my motorcycle, it's her that i want to put me back together. she cares more about everybody else than she does about herself. that's all.

Quote from Trent on 4/5/2009 at 7:15 PM:

If your cure was in part the result of stoking your anger, how will you inspire that in the internal medicine doc who you wish to treat? For real.

oh man, if you only knew this girl. her hatred of western medicine makes me look like a nurse's aide. if you get her talking about end of life stuff, she cries. she practices it, but she hates it.

Quote from Trent on 4/5/2009 at 7:15 PM:

Well, not exactly. I don't see this as an apt metaphor

ok, that's fine, let's try another metaphor. let's talk car mechanics. my last mechanic said, 'greg, this thing is a pile of crap. i can't fix it and expect it to run, i can't make it look good, all i can do is scrap it.' then he gave me the option of deciding what to do with it. keep it? sell it? scrap it? does this sound familar? let's talk about my doc back in 1998; he said, 'i don't know what's wrong with you, i don't know how to treat you, i don't know who to refer you to, but i think you should drop out of school, quit your job, move home, and let your mom take care of you....' yeah, i get it, 'until you die.' great. no mechanic expects compensation when he or she offers no results. docs do. and they get it. insurance companies reimburse them for nothing. and i do mean nothing. as such, there is no financial motivation to accomplish anything. the result? you know this way more than i do: 'save your ass' medicine. unfortunately, it's the doc's ass we're talking about.

Quote from Trent on 4/5/2009 at 7:15 PM:

I look forward to your responses and hope that you can avoid expressing your anger towards me.

there never was any anger expressed towards you.

Wingz

Professional Noob

posted: 4/10/2009 at 3:21 AM
modified: 4/10/2009 at 3:24 AM

Hey, Greggar. I'm a big fan of going to a specialist when I have a problem. I made the mistake once of letting an urgent care doc give me long term advice for the management of a torn ACL... and as a result I lost over a month's worth of recovery time because of his incorrect advice (to keep it immobilized and not use the leg). Now, when I have an orthotic problem, I look for an orthotic doc and have had much better results. If I were to have a GI problem, I'd look for a GI specialist because they're more familiar with that area of medicine. No, they're not perfect. But they're more likely to have a solution. ER docs, like you said, are great for taking care of emergency medicine. If I had a heart attack, I'd want an ER doc, not a podiatrist, taking care of me. After I was stable, though, I would need a cardiologist. Frankly, ER docs suck for managing long term problems, because that's not what they're experienced at. It's not their specialty. You want to get better - go to the people most likely to have answers that can help you. And if someone tells you "just give up" then obviously you've got a bad doc - and you need to get a different one that can actually help. They're people - you get some good apples and some bad apples. Got a bad apple? Spit it out and try a different fruit, don't take another bite of the first one. Tongue

That said, I'm really glad you've got a solution that's working for you. If for some reason it stops working or you have a different problem, I'd really suggest going straight to a specialist and bypass the generalists all together. Family docs are great for general advice and check-ups... but if you have an issue in an area that there is a specialist for, your best interest lies with the specialist. My $0.02. Wink

Roads were made for journeys...

dprice81

Food, Folks, Fun, Beer

posted: 4/10/2009 at 8:45 AM

I went through this IBS thing. IBS w/ constipation. It's just a combination of medicine, exercise, and diet to manage it. I take a combo of: Zoloft Prilosec OTC lactaid (lactose intolerant) Diet: drink lots of water eat fiber whenever possible (oatmeal for breakfast is great) taking fiberchoice chewable fiber supplement is the best supplement out there (tried many) Exercise: Running helps rev up the metabolism. Now if someone can help me with reynaud's phenomenon, finding a decent paying job, finding a girlfriend, moving out of my parents house and into an inexpensive apt and going from running 35:00 5k's back into running 25:00 5k's that'd be great. Next!

Wingz

Professional Noob

posted: 4/10/2009 at 9:43 AM

Quote from dprice81 on 4/10/2009 at 8:45 AM:

going from running 35:00 5k's back into running 25:00 5k's that'd be great.

http://www.runningahead.com/forums/topic/9ce173f4f56c4188bcc6e332f14c6dec Sub-30 min 5K thread. Dunno about the rest of it, though... Wink

Roads were made for journeys...

Anyone run with IBS? (Read 1557 times)